Helpful resource websites

Mid-Atlantic Connection for PKU and Allied Disorders, Inc. www.macpad.org (cookbooks, recipes and support)

National Coalition for PKU and Allied Disorders www.pku-allieddisorders.org (recipes, support, information)

State of Michigan www.michigan.gov (Newborn Screening info)

Parents of Galactosemic Children, Inc www.galactosemia.org

National Center on Birth Defects and Developmental Disabilities www.cdc.gov/ncbddd

National PKU News www.pkunews.org (resources, cookbook and food data book, information)

Children’s PKU Network www.pkunetwork.org

MSUD Family Support Group www.msud-support.org

University of Washington depts.washington.edu/pku (recipes, books and videos)

Mead Johnson www.meadjohnson.com ( Has list of clinics in every state and information about disorders)

Save Babies Through Screening Foundation, Inc. www.savebabies.org

For My Diet www.formydiet.com (Has information about most disorders, diets, and has home monitoring equipment)

Phenylketonuria (PKU) www.mdhardy.net (A very informative site with great recipes among other things!)

On-line Teen/Adult PKU listserv Group www.pkuadult@aol.com

Resource Mothers Maternal PKU Program www.childrenshospital.org/newenglandconsortuim (click on Patients and Families, then Resource Mothers).

Homocystinuria www.hcusupport.com/ ( created by the mother of a homocysinuria son)

Argininosuccinic Aciduria (ASA) www.asakids.org/ www.nucdf.org/

National Organization for Rare Disorders www.rarediseases.org/ (Information about all disorders)

Michigan Virtual University www.mivu.org ( Online Newborn Screening Course)

National Newborn Screening and Genetics Resource Center (NNSGRC) www.genes-r-us.uthscsa.edu (Information about all aspects of Newborn Screening)

Cares Foundation www.caresfoundation.org ( information about Congenital Adrenal Hyperplasia)